The 2019 Conference will be held over Labor Day in Chicago, Illinois


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conference Schedule and Speaker bios

Let your voice be heard as a patient. Our conference is run by patients and for patients to demonstrate that we are organized as a community and ready for new emerging treatments.   


We have assembled the best and brightest experts at the first conference ever dedicated to Limb Girdle Muscular Dystrophy.  The leading biotechs and pharma companies who are developing new genetic treatments for LGMD will be in attendance.



Download Schedule