The 2019 Conference will be held over Labor Day in Chicago, Illinois

The First National Conference for all forms of Lgmd

Conference Information


Hyatt Regency - Chicago, Illinois 

Conference Dates are Friday, August 30th to Monday, September 2nd, 2019

Let the patient voice be heard.  The mission of this conference is to provide momentum to emerging treatments.  The National Limb Girdle Muscular Dystrophy Conference exists to demonstrate to venture capitalists and biotechs that the LGMD patient community is robust, mobilized, and ready to aggressively advocate for effective treatments that are developed. The nation's leading neurologists in Limb Girdle Muscular Dystrophy will be present along with major biotech companies on the cutting edge of emerging research. The goal is to find treatments that are fast, effective, and safe for all forms of LGMD.  Limb Girdle Muscular Dystrophy is a very serious, debilitating form of muscular dystrophy that primarily affects the muscle groups of the hips, arms, and legs.  Many subtypes also affect cardiac and breathing muscles which may lead to premature death.  Though forms vary, most individuals will use a wheelchair or mobility scooter eventually due to loss of ambulation.

Patients and Families


Our conference unites everyone dealing with Limb Girdle Muscular Dystrophy so we can find safe, effective treatments fast.  This conference is dedicated to bringing every patient into an active role seeking to find cures and treatments alongside doctors, biotech, and pharmaceutical companies.  Our conference allows individuals to hear from the experts on new, emerging treatments. 

Top Research from Leading Stakeholders


This is the first national conference for LGMD bringing together leading scientists, physicians, and biotech companies all in one place.  Meet others passionate about finding treatments and collaborate to find help for the patient dealing with muscular dystrophy.  Let's find a treatment,  inspire hope for thousands of families, and save lives.  Treatments have never been closer.