Check back April 5th to register for the conference!

a patient led movement to treat Limb Girdle Muscular Dystrophy
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THE 2023 CONFERENCE WILL BE HELD IN WASHINGTON D.C. October 27-29th!

#BElieveTHEreisHOPEforacure

THE 2023 CONFERENCE WILL BE HELD IN WASHINGTON D.C. October 27-29th!

#BElieveTHEreisHOPEforacure

About the conference

Future Focused

Future Focused

Future Focused

In the 2023 conference, we will present updates on the latest research and new information from the  pharmaceutical industry with the world's leading biotechs.  Grasp LGMD researchers, also the world's best on LGMD, will present at our event to give firsthand information on new clinical trials.  We are excited to hear about all the new companies interested in joining our effort to treat LGMD!

Our Goal

Future Focused

Future Focused

The goal of the 2023 International Limb Girdle Muscular Dystrophy Conference is to bring everyone living with LGMD together in an unprecedented number as we renew our commitments to advocacy and treatments!  Back in person since 2019, we continue to share the goal with everyone living with LGMD to see treatments get here quickly and safely.  

Unmet Need

Future Focused

Unmet Need

Limb-girdle muscular dystrophy is a very serious, debilitating form of muscular dystrophy that primarily affects the muscle groups of the hips, arms, and legs.  Many subtypes also affect cardiac and breathing muscles which may lead to premature death. Though forms vary, most individuals will use a wheelchair or mobility scooter eventually

Limb-girdle muscular dystrophy is a very serious, debilitating form of muscular dystrophy that primarily affects the muscle groups of the hips, arms, and legs.  Many subtypes also affect cardiac and breathing muscles which may lead to premature death. Though forms vary, most individuals will use a wheelchair or mobility scooter eventually due to loss of ambulation.  There are still no treatments commercially available for patients living with LGMD.

Copyright © 2019  National Limb Girdle Muscular Dystrophy Conference , International LGMD Conference, and the International Limb Girdle Muscular Dystrophy Conference


Copyright © 2008 The Speak Foundation - All Rights Reserved.


Copyright © 2019 Limb Girdle Muscular Dystrophy Conference - All Rights Reserved.


The International Limb Girdle Muscular Dystrophy Conference is a program and project of the Speak Foundation.  To find out more about the Speak Foundation, visit our website at www.thespeakfoundation.com.

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