The 2019 Conference will be held over Labor Day in Chicago, Illinois


Conference Date and Location

Conference dates are August 30th to September 2nd, 2019.  Hotel reservations and registration for the conference will begin starting Oct 15th, 2018.  

Our 2019 conference will be held at the largest hotel in downtown Chicago, the Hyatt Regency.  The Hyatt Regency is just steps away from the beautiful Navy Pier.  

The National Conference has group rates at our hotel and many accessible roll in rooms.  We suggest booking early to reserve your hotel room due to the demand for accessible rooms.  Any special requirements you need for your room are to be handled through the hotel.  

Stipends are available for those who reserve their room at the hotel and also purchase a registration ticket by December 31st, 2018.  To qualify for a stipend, the attendee must be staying overnight at the hotel.  Stipends will be mailed to you at the conclusion of the conference.  You will receive notice by Feb 15th if you are eligible for a stipend.  

To attend the National LGMD Conference,

registration is simple. 

Step One: Discounted tickets go on sale to attend the conference on October 15th, 2018 and the registration is just $20 per person.  Your registration fee has been reduced by generous contributions the reduced ticket registration is available until January 31st for patients and families.  After Jan 31st, a registration ticket costs $50 per person.  Please make sure to reserve your ticket early to receive the reduced rate:

Step #2: If you are coming from out of town, reserve your reduced rate hotel room for the National Limb Girdle Muscular Dystrophy Conference, 

by clicking here:

Please note that there is a huge interest in our national conference so purchase your registration ticket early and reserve your hotel room soon.