The National LGMD Conference is a project and program of the Speak Foundation



Conference Date and Location


The deadline to register for the conference 

was August 10th, 2019.  

There are other ways to interact with our community if you missed our registration at 

For those who registered to attend, patient check in for the conference begins at the hotel on 

Friday, Aug 30th 2019 from 3-5:30 pm and our 

first event is on Friday at 7:00 pm at our reception.  

Please download conference schedule below.

Our 2019 conference will be held at the largest hotel in downtown Chicago, the Hyatt Regency.  The National Conference has group rates at our hotel and many accessible roll in rooms.  We suggest booking early to reserve your hotel room due to the demand for accessible rooms.  Any special requirements you need for your room are to be handled through the hotel.  

Stipends are available for those who reserve their room at the hotel and also purchase a registration ticket by December 31st, 2018.  To qualify for a stipend, the attendee must be staying overnight at the hotel.  Stipends will be mailed to you at the conclusion of the conference.  You will receive notice by Feb 15th, 2019 if you are eligible for a stipend.  

To attend the National LGMD Conference,

registration is simple. 

Step One: Discounted tickets go on sale to attend the conference on October 15th, 2018 and the early registration fee for patients is just $20 per person.  Your fee has been reduced by generous contributions and the reduced ticket registration is available until January 31st, 2019 for patients and families.  

After Jan 31st, a registration ticket costs $50 per person for patients.  Please make sure to reserve your ticket early to receive the reduced rate: 

Step #2: If you are coming from out of town, reserve your 

reduced rate hotel room for the National Limb Girdle 

Muscular Dystrophy Conference, 

by clicking here:

Please note that there is a huge interest in our national conference so purchase your registration ticket early and reserve your hotel room soon.