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REGISTER

2025 INTERNATIONAL LGMD CONFERENCE

The 2025 International Limb-Girdle Muscular Dystrophy Conference is being held Friday, July 18 - Sunday, July 20, 2025 in Orlando, FL. 


Early bird registration is open now!

REGISTER HERE


We are thrilled to announce that the conference will end with an optional LGMD Family Fun Day on Monday, July 21 at many of Orlando's famous theme parks! This non-sponsored event is designed to bring together families, patients, and caregivers for a day of relaxation, fun, and community bonding in a magical setting. We encourage all attendees to participate, as the day promises to be filled with laughter, joy, and support. 


Event Details:

  • Date: Monday, July 21st
  • Time: Varies based on adventure choice, more details to come
  • Choose Your Adventure:
    • Walt Disney World
    • Universal Studios Orlando
    • SeaWorld Orlando
    • Marriott Orlando Grande Lakes Waterpark
  • Tickets must be purchased individually by attendees for their preferred park. We encourage participants to buy their tickets directly through the park's official website or at the gate. Admission to theme parks and external attractions is not included in conference registration.
  • Transportation: Transportation to and from the parks is also the responsibility of the attendees. Please plan ahead to ensure a smooth experience. We encourage participants to arrange their preferred transportation options in advance, whether through car rental, rideshare, or public transit.
  • Updates: For the latest updates and to connect with other attendees, be sure to check out the  Limb Girdle Muscular Dystrophy Conference Facebook Page . Join the group chats to share your plans, coordinate park visits, and form groups with fellow attendees.


Each destination offers a unique experience tailored for all ages and abilities. Whether you prefer the magic of Disney, the thrills of Universal, the marine life of SeaWorld, or the relaxing vibes of a waterpark, there’s something for everyone!


Stay tuned for more details, and we look forward to a magical day with you!


See important hotel information below, including additional hotels options if you require an ADA ROLL-IN shower.*

Additional details

Hotel Information

JW Marriott Orlando Grande Lakes is located in Orlando, FL, on a lake, a 2-minute drive from The Ritz-Carlton Golf Club and 5 minutes from Aquatica. This upscale hotel is 3.5 mi (5.6 km) from Orange County Convention Center and 4.2 mi (6.7 km) from Pointe Orlando.

www.grandelakes.com


Address

4040 Central Florida Pkwy, Orlando, FL 32837 US


Phone 

(407) 206-2300

(800) 433-5402


*NOTE REGARDING ADA ROLL-IN SHOWER AVAILABILITY AT CONFERENCE LOCATION (update as of 9/11/24)

Our conference room-block included all roll-in shower rooms at the JW Marriott (conference location) as well as the nearby Ritz Carlton. At this time, all ADA rooms with roll-in showers at both of these hotels are booked. There are still standard ADA rooms and standard rooms available at the conference hotel as well as the Ritz. If you require a roll-in shower room, we are providing you with a list of hotels below (at varying levels and proximity) to contact regarding roll-in availability.  Note: there are two hotels "walkable" to the JW Marriott (first two hotels below); all other properties will require a taxi or rental car to get to the conference, as public transportation is not an option in this area. The first four hotels below are premium-level properties similar to JW Marriott.


Property Name- Star Rating- Price Range- Distance from JW Marriott:

Ritz Carlton- 5-star hotel- $$$$- 5 minutes walking path (roll-in showers booked)
Marriott's Lakeshore Reserve (Timeshare property)- 3-star hotel- $$$- 6 minutes walking path
Rosen Shingle Creek- 4-star hotel- $$$- 8 minutes by car / taxi

Renaissance Orlando at SeaWorld- 4-star hotel- $$$- 10 minutes by car / taxi

Courtyard Orlando South/Grande Lakes Area- 3-star hotel- $$- 5 minutes by car / taxi

TownePlace Suites Orlando at SeaWorld®- 2-star hotel- $- 8 minutes by car / taxi

Marriott's Grande Vista (Timeshare property)- 4-star hotel- $$- 10 minutes by car / taxi

Hilton Grand Vacations Club SeaWorld Orlando (Timeshare property)- 4-star hotel- $$- 10 minutes by car / taxi

DoubleTree by Hilton Hotel Orlando at SeaWorld- 4-star hotel- $$- 10 minutes by car / taxi

Staybridge Suites Orlando at Seaworld- 3-star hotel- $$- 10 minutes by car / taxi

Hilton Garden Inn Orlando at SeaWorld- 3-star hotel- $$- 10 minutes by car / taxi


More about the JW Marriott Orlando Grande LakesRelax at the full-service spa, where you can enjoy massages, body treatments, and facials. While the golfer in the family is out on the course, you can enjoy above-par recreational amenities such as outdoor tennis courts and an outdoor pool. This hotel also features concierge services, an arcade/game room, and gift shops/newsstands. Guests can catch a ride on the shuttle (surcharge), which operates within 5 miles.


Enjoy Italian cuisine at Primo, one of the hotel's 4 restaurants, or stay in and take advantage of the 24-hour room service. Snacks are also available at the coffee shop/cafe. Relax with your favorite drink at the bar/lounge or the poolside bar. Buffet breakfasts are available daily from 7 AM to 11 AM for a fee.


Featured amenities include a business center, express check-in, and express check-out. Event facilities at this hotel consist of conference space and meeting rooms. Guests may use a bus station shuttle for a surcharge, and self parking (subject to charges) is available onsite.


Make yourself at home in one of the 1010 air-conditioned rooms featuring iPod docking stations and LCD televisions. Your room comes with a pillowtop bed. Satellite programming and video-game consoles are provided for your entertainment, while wireless internet access (surcharge) keeps you connected. Private bathrooms with separate bathtubs and showers feature deep soaking bathtubs and designer toiletries.


Event & Activity Guide-   

https://www.flipsnack.com/marriottenhancements/grande-lakes-orlando-newsletter/full-view.html


To keep abreast of conference news, please follow us on Facebook – 

https://www.facebook.com/InternationalLimbGirdleMuscularDystrophyConference


Any questions? Contact lgmdconference@gmail.com.


JW Marriott Orlando Grande Lakes

Copyright © 2024 International Limb Girdle Muscular Dystrophy Conference, Limb Girdle Muscular Dystrophy Conference, International LGMD Conference - All Rights Reserved. 


Copyright © 2019  National Limb Girdle Muscular Dystrophy Conference, Limb Girdle Muscular Dystrophy Conference, International LGMD Conference, and the International Limb Girdle Muscular Dystrophy Conference- All Rights Reserved.


Copyright © 2008 The Speak Foundation - All Rights Reserved.


The International Limb Girdle Muscular Dystrophy Conference is a program and project of the Speak Foundation. To find out more about the Speak Foundation, visit our website at www.thespeakfoundation.com

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