Registration is open! #BElieveTHEreisHOPEforacure
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The 2023 International Limb-Girdle Muscular Dystrophy Conference is being held Friday, October 27 - Sunday, October 29, 2023 at the Grand Hyatt in Washington, D.C.
The inaugural International LGMD conference held in Chicago in 2019 welcomed over 400 patients, caregivers, physicians, researchers and advocacy groups representing ALL forms of LGMD. The second International LGMD conference in 2021 was offered in a virtual format due to COVID-19. This year we are excited to return to an in-person event! (*There will also be a virtual option to live stream all the general conference sessions. Virtual tickets will go on sale at a later date, so please check back for updates).
Don't miss this important event where you will hear from leading experts in the field, learn about the latest developments in clinical trials, meet industry leaders, and connect with the LGMD patient community.
Registration is now OPEN! We encourage you to purchase your tickets via EventBrite to attend the conference and book your hotel accommodations early! Conference early bird tickets for patients and caregivers are just $25 per person which includes a reception Friday evening, lunch/dinner Saturday and Sunday lunch.
You will find additional information on hotel, speakers, and more below, as well as in greater detail when you select the Registration buttons on this page.
The keynote speaker is Dr. Peter Marks, head of the Center for Biologics Evaluation and Research (CBER) at the FDA. Dr. Marks will discuss the challenges in developing therapies for ultra-rare diseases and some of the initiatives that FDA and its partners have undertaken to facilitate therapy development.
Other confirmed speakers for the Conference include:
Dr. Carsten Bonnemann of the NIH, Dr. Volker Straub of the University of Newcastle, Dr. Louise Rodino-Klapac of Sarepta Therapeutics, Dr. John Vissing of the University of Copenhagen, Dr. Sharon Hesterlee of the MDA, Dr. Nicholas Johnson of Virginia Commonwealth University, Dr. Douglas Sproule of ML Bio Solutions, and Dr. Linda Lowes of Nationwide Children’s Hospital.
Grand Hyatt Washington is located in downtown Washington, D.C., just blocks away from the National Mall. While visiting the nation's capital, you'll enjoy exceptional comfort and service, as well as a direct connection to the city via the metro from the hotel.
1000 H Street NW
Washington, D.C., United States, 20001
+1 202 582 1234
Hotel block – You will be provided with the hotel link during the Eventbrite registration process. The reduced rate hotel block at the Grand Hyatt ($249/night, not including taxes/fees) includes ADA roll-in shower rooms, ADA tub rooms, and standard rooms. In the event that the hotel ADA rooms are full, please note that there are multiple hotels within close distance of the Grand Hyatt.
**Room availability/Alternate accommodations**: When you are using the Hyatt’s room reservation link for the conference, if you do not see "accessible" or "roll-in shower" in the description, it is not an ADA room! In the event that all of the ADA rooms (roll in and tub shower) are booked at the Hyatt and you are not able to find what you need, we want you to be aware of alternate options nearby with accessible rooms. Please note that each of the following hotels has their own standard rates and fees that apply (these are not contracted rates or blocks for the conference).
775 12th St NW, Washington, DC 20005
Embassy Suites by Hilton Washington DC Convention Center
900 10th Street NW Washington, DC 20001
Conrad Washington DC
950 New York Ave NW, Washington, DC 20001
Renaissance Washington, DC Downtown Hotel
999 Ninth Street NW, Washington, DC 20001
Financial assistance – There are a limited number of travel stipends available at $500 per family, offered on a first come, first serve basis (you must purchase our discounted early bird registration to be considered). You will see an option to apply for assistance during the Eventbrite registration process. The stipend will be provided to those who are approved (notified in July) on the last day of the conference, Sunday, October 29.
Parking and Accessible transportation – There are valet and self-parking options at the hotel, as well as nearby garages. There are a number of accessibility transportation services also offered in the Washington, D.C., area. The following links can provide more detail as you plan your travel.
Hotels Parking and Transportation | Grand Hyatt Washington
Accessibility Information in Washington, DC | Washington DC
MetroAccess Paratransit | WMATA
Nearby attractions – Grand Hyatt Washington is in the heart of Washington, D.C., being within a mile of some of the country's most historic and beautiful buildings, monuments, and museums.
DC Attractions | Grand Hyatt Washington
To keep abreast of conference news, please follow us on Facebook – https://www.facebook.com/InternationalLimbGirdleMuscularDystrophyConference
Any questions? Contact firstname.lastname@example.org.
Grand Hyatt- Washington, D.C.
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Copyright © 2019 National Limb Girdle Muscular Dystrophy Conference, Limb Girdle Muscular Dystrophy Conference, International LGMD Conference, and the International Limb Girdle Muscular Dystrophy Conference- All Rights Reserved.
Copyright © 2008 The Speak Foundation - All Rights Reserved.
The International Limb Girdle Muscular Dystrophy Conference is a program and project of the Speak Foundation. To find out more about the Speak Foundation, visit our website at www.thespeakfoundation.com