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a patient led movement to treat Limb Girdle Muscular Dystrophy
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a patient led movement to treat Limb Girdle Muscular Dystrophy

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Welcome to The International LGMD Conference

July 18-21, 2025

JW Marriott Orlando Grande Lakes

4040 Central Florida Pkwy

Orlando, FL 32837


 Registration for in person attendance is now full! 

You can still participate by purchasing virtual tickets.  Read more details on our registration page.

About the Conference

Future Focused

Future Focused

Future Focused

In the 2025 conference, we will present updates on the latest research and new information from the  pharmaceutical industry with the world's leading biotechs.  GRASP-LGMD researchers, also the world's best on LGMD, will present at our event to give firsthand information on clinical trials.  We are excited to hear about all the new companies interested in joining our effort to treat LGMD!

Our Goal

Future Focused

Future Focused

The goal of the 2025 International Limb Girdle Muscular Dystrophy Conference is to bring everyone living with LGMD together in an unprecedented number as we renew our commitments to advocacy and treatments!  We continue to share the goal with everyone living with LGMD to see treatments get here quickly and safely.  

Unmet Need

Make Connections

Make Connections

Limb-girdle muscular dystrophy is a very serious, debilitating form of muscular dystrophy that primarily affects the muscle groups of the hips, arms, and legs.  Many subtypes also affect cardiac and breathing muscles which may lead to premature death. Though forms vary, most individuals will use a wheelchair or mobility scooter eventually

Limb-girdle muscular dystrophy is a very serious, debilitating form of muscular dystrophy that primarily affects the muscle groups of the hips, arms, and legs.  Many subtypes also affect cardiac and breathing muscles which may lead to premature death. Though forms vary, most individuals will use a wheelchair or mobility scooter eventually due to loss of ambulation.  There are still no treatments commercially available for patients living with LGMD.

Make Connections

Make Connections

Make Connections

  If you are a patient or family member attending, here are different groups  you can connect with, share with, and learn from: 

  

Clinicians/Researchers/Specialists 

Companies developing treatments

Fellow patients

Advocacy organizations

and more!

Attendee Testimonial Video from the 2023 LGMD Conference

Hear from past attendees about why you should join us in Orlando! You won't want to miss it!

Photos from the 2023 International LGMD Conference, Washington, DC

    Copyright © 2024 International Limb Girdle Muscular Dystrophy Conference, Limb Girdle Muscular Dystrophy Conference, International LGMD Conference - All Rights Reserved. 


    Copyright © 2019  National Limb Girdle Muscular Dystrophy Conference, Limb Girdle Muscular Dystrophy Conference, International LGMD Conference, and the International Limb Girdle Muscular Dystrophy Conference- All Rights Reserved.


    Copyright © 2008 The Speak Foundation - All Rights Reserved.


    The International Limb Girdle Muscular Dystrophy Conference is a program and project of the Speak Foundation. To find out more about the Speak Foundation, visit our website at www.thespeakfoundation.com

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