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Welcome to The International LGMD Conference
Registration is open !
July 18-21, 2025
JW Marriott Orlando Grande Lakes
4040 Central Florida Pkwy
Orlando, FL 32837
The Conference is being held Friday, July 18 - Sunday, July 20, 2025 in Orlando, FL.
We are thrilled to announce that the conference will end with an optional LGMD Family Fun Day on Monday, July 21 at many of Orlando's famous theme parks! This non-sponsored event is designed to bring together families, patients, and caregivers for a day of relaxation, fun, and community bonding in a magical setting. We encourage all attendees to participate, as the day promises to be filled with laughter, joy, and support. Read more details on our registration page.
About the Conference
Future Focused
Future Focused
Future Focused
In the 2025 conference, we will present updates on the latest research and new information from the pharmaceutical industry with the world's leading biotechs. GRASP-LGMD researchers, also the world's best on LGMD, will present at our event to give firsthand information on clinical trials. We are excited to hear about all the new companies interested in joining our effort to treat LGMD!
Our Goal
Future Focused
Future Focused
The goal of the 2025 International Limb Girdle Muscular Dystrophy Conference is to bring everyone living with LGMD together in an unprecedented number as we renew our commitments to advocacy and treatments! We continue to share the goal with everyone living with LGMD to see treatments get here quickly and safely.
Unmet Need
Make Connections
Make Connections
Limb-girdle muscular dystrophy is a very serious, debilitating form of muscular dystrophy that primarily affects the muscle groups of the hips, arms, and legs. Many subtypes also affect cardiac and breathing muscles which may lead to premature death. Though forms vary, most individuals will use a wheelchair or mobility scooter eventually
Limb-girdle muscular dystrophy is a very serious, debilitating form of muscular dystrophy that primarily affects the muscle groups of the hips, arms, and legs. Many subtypes also affect cardiac and breathing muscles which may lead to premature death. Though forms vary, most individuals will use a wheelchair or mobility scooter eventually due to loss of ambulation. There are still no treatments commercially available for patients living with LGMD.
Make Connections
Make Connections
Make Connections
If you are a patient or family member attending, here are different groups you can connect with, share with, and learn from:
Clinicians/Researchers/Specialists
Companies developing treatments
Fellow patients
Advocacy organizations
and more!