Thank you to the Speak Foundation for organizing the first National LGMD Conference!


Get involved! You can make a difference!

We are looking for experienced volunteers for the following positions:   

Social Support Facebook Facilitators who assist the newly diagnosed and create community.

Volunteer Delegates to assist with future events like LGMD Day on the Hill to make sure our voice is heard in matters affecting our rare disease patient community (must reside in the USA).

Event Coordinators to assist with potential future conferences and have professional experience in this field overseeing aspects such as AV production, marketing, and conference prep (must reside in the USA).

Social Media Account Specialists who have professional experience in the field.

Volunteer Form

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Believe there is hope for a cure!

The National Limb Girdle Muscular Dystrophy Conference